Brittany’s Story

By Sydney Bedell

My sister, Brittany, has always been so inspiring to me. Despite being born with amniotic band syndrome (ABS), she has overcome so many hurdles in her life. ABS is a syndrome that causes birth defects in babies such as: loss of limbs, fingers, cleft lip, and cleft palate. These birth defects are caused by fibrous bands that get entangled within parts  of the body and stop blood flow, which causes the limb to then fall off.  ABS occurs randomly; it’s not genetic nor what the mother did or did not do during the pregnancy. Brittany is an amputee on her right leg from the knee down and is missing several of her fingers from knuckle down on both hands.

In the winter of 2014/2015 my sister started a small Christian youth group. In this group she shared what she knew about God’s word, and how he had helped her overcome many hard times in her life. In April of 2015, we had planned a trip to the popular AirFX trampoline park. Brittany, not wanting to letting her disability stop her from doing anything, got hurt. After being rushed to the hospital in an ambulance, and hours of crying and screaming, the doctors tried putting the knee on her amputated leg back in place, but weren’t successful. After a surgery and a whole lot of work missed, some wonderful things came toward her.

While on the road to recovery, her work started a GoFundMe page, to raise money for her while she was out of work. To fill up her spare time she started crafting handmade jewelry, as well as playing guitar, singing with our gospel band, and just started playing the mandolin! She sells her jewelry on Etsy and Amazon, as well as having a website of her own that she created to sell her jewelry. Along with her jewelry making she has been spreading the word about her ABS syndrome, informing the public of her story, and how she made the best of it.

Recently within the last couple of months, she has had people reaching out to her about her ABS, and about their own, or their kids who were born with ABS. A website call the Mighty, recently shared her story, along with a couple from her journey with. She is such an amazing and talented woman who has mission to make the world known that even with disabilities things are possible. Head over to the Mighty and check them out!

#1 https://themighty.com/2016/09/when-strangers-ask-questions-about-my-limb-difference/

#2 https://themighty.com/2016/07/living-with-amniotic-band-syndrome-of-the-hands-and-feet/

#3 https://themighty.com/2016/07/empowerment-through-educating-kids-about-amniotic-band-syndrome/

#4 https://themighty.com/2016/09/things-i-want-parents-of-children-with-limb-differences-to-know/

Advertisements

Author:

This is the blog run by the Writing for Media class.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s